Michael Bass, a partner in the Albany office of Abrams Fensterman, was recently interviewed by CBS News 6 Albany regarding the legal implications of a reported proposal by the National Institutes of Health (NIH) to establish a national autism registry.
Bass explained the potential privacy concerns associated with such a registry. While HIPAA permits the use of personal health information for research purposes under certain conditions, Mr. Bass noted that these provisions typically require approval from institutional review boards and privacy boards to ensure appropriate oversight.
“It’s all about your personal privacy information, your healthcare information. People don’t want other people to know about their healthcare issues.”
– Michael Bass, Partner, Albany Office
Bass encouraged individuals who may be affected to seek legal advice and consider reaching out directly to the NIH to better understand how their information might be used.
The full article can be viewed on the CBS News 6 website: Legal questions raised over reported plan for national autism registry.
